Modern healthcare can achieve incredible things
Some people with undiagnosed or complex symptoms are forgotten in the system and miss vital care. Even patients with recognised conditions may be overlooked.
While there are charities for specific rare diseases, those who are misdiagnosed or fall between categories often have little support.
We want to change that.
Who we are
We are a multidisciplinary, international group of:​
Healthcare professionals
Scientists and researchers
Public health experts​
Campaigners, communicators, and politicians​​
People with lived experience
Ethicists, chaplains, and spiritual carers​
We are united by one aim: to advocate for those overlooked in healthcare.
Our Purpose
We seek to improve health and wellbeing by:
Supporting overlooked conditions
Supporting & conducting research
Developing Resources
Promoting education & awareness
Signposting services
Advocating for policy change
Our Purpose
We seek to improve health and wellbeing by:
Supporting overlooked conditions
Developing Resources & Signposting services
Promoting education & awareness
Supporting & conducting research
Advocating for policy change
Guiding principles
We believe in a better way of working. We take a holistic, example- driven approach, analysing selected conditions in depth so that insights can be applied more broadly:
Drive change where it’s most needed
Collaborate, not duplicate​​​​
Empower Patients— they are the experts in their condition
Tackle barriers to access and diagnosis
Educate clinicians on interconnected symptoms across systems
Promote inclusion, avoiding all forms of discrimination
Apply multidisciplinary thinking — clinical, social, ethical, spiritual, and structural